Showing posts with label Inclusion. Show all posts
Showing posts with label Inclusion. Show all posts

Jun 4, 2012

Let's Go, Matt! Let's Go!

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Matt has Spastic Cerebral Palsy, but opted to run in Field Day at Colonial Hills Elementary School despite being given the option to sit it out and despite the incredible challenge of his disability. What transpires is a boy who is filled with determination and a school of children who spontaneously come together and inspire Matt and everyone of us to do and be better.


Jan 24, 2012

Fishbowl Cards


I wanted to share a resource I recently found, Fishbowl Cards. They sell special needs-related cards and posters, they have some really, really cute things! Here are just a few....


Jan 23, 2012

The Most Beautiful Things

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I was so grateful Jocalyn shared this trailer and film on her blog. It truly inspired me for many reasons, so I thought I'd share it! Here is the trailer and the actual, full film. Truly amazing.






Jan 9, 2012

Hailey with Impact Dance Company

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A while back I wrote a post called "A Dance for Hailey" Hailey's mom Natalie has a best friend who has a dance company called Impact Dance Company, it is a fairly new company but the dream to do this choreography has been in the making for almost 5 years now. Ever since Hailey was born with Cerebral Palsy, Meghan McCaffrey dreamed about doing a dance piece that would help others to understand and raise awareness for Cerebral Palsy and to celebrate Hailey and all that she has to offer. Well, today we had the opportunity to meet the dancers and the dancers had the opportunity to meet their inspiration (Hailey) The had the opportunity to observe Hailey's movements, and the way that she crawls,smiles,sits acts, and laughs. The next two videos are just so exciting to me, as I watch Hailey act out and perform with the dancers without any prompts from us, she was totally comfortable with what she was doing and even commanded the stage.



One of Hailey's dancers summed up our morning by saying " We danced, we talked, we laughed, we learned and we cried" All of these emotions were present and I can't figure out who learned more. Us, The Dancers or Hailey. But I do know that it was one of the most positive experiences for everyone involved, and we can't wait to do it again.



I don't quite know all the details at this point, but Meghan tells me she plans on doing this piece in a theatre, it will start out with some information about C.P., Possibly a video chronicalling Hailey's journey this far, and the finale will be a Rockin performance by her dance company that will captures the true spirit of Hailey. This is going to be a lot of hard work over the next few months, but I know it will be worth the wait! Thank you Meghan...head on over to Impact Dance Company become a fan and you can track the progress of this lovely and heartfelt performance for Hailey.

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Oct 17, 2011

Sparkle Effect

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I saw this article on the ams vans blog. It made me smile, so I had to share it!



Sarah Cronk, the creator of the Sparkle Effect, a non-profit organization that helps high schools around the world create inclusive cheerleading programs, was awarded the $100,000 as part of VH1′s Do Something Award. The award recognizes teens who promote social change, and Sarah’s organization aims to help teens learn that individuals with disabilities are capable of great things. Just 18-years-old and cheerleader herself, Sarah created and coached the first inclusive cheerleading team that includes both students with disabilities and without disabilities when she was just 15-years-old!



Sarah started an inclusive cheerleading squad—the Spartan Sparkles—at her high school after noticing the struggles of her brother, who has autism, to fit in and find social outlets. Her brother was befriended by the school’s swim team captain, and Sarah saw how this simple act of inclusion changed her brother’s life for the better. A cheerleader herself, she wanted to help other kids with disabilities like her brother’s have a better high school experience and enjoy sports and other extracurricular activities that they had not been able to enjoy.



The Spartan Sparkles cheerleading squad, which performed at sports games along with the regular squad, was a huge success. In 2009, the program reached capacity, and instead of congratulating herself on a job well done, Sarah wanted to expand the program. She then created the Sparkle Effect with the goal of helping other high schools create similar inclusive sports programs for teens with developmental and physical disabilities. The Sparkle Effect provides mentors, support, training, grants for uniforms, as well as a free starter kit for schools and organizations who want to start inclusive sports programs.



Map of Sparkles Cheer Teams Across the USA



“Students at all the schools have reported that cheerleaders who are on the squads who have disabilities are being included outside of the squad,” Sarah said in a video that aired during the VH1 show. “People are more willing to talk to them at school. It puts the spotlight on their abilities rather than their disabilities.”






The Sparkle Effect now helps over 50,000 students with and without disabilities understand the importance of inclusion. The Do Something Award will help the program expand and reach even more teens, so that a new generation of people will be able to understand that abilities are more important than disabilities.

Three cheers for Sarah!


Sources:
http://www.disabilityscoop.com/2011/08/23/teen-inclusive-cheerleading/13790/
http://www.huffingtonpost.com/sarah-cronk/the-sparkle-effect-when-e_b_929193.html
http://www.dosomething.org/
http://www.thesparkleeffect.org/index.php?pg=18

Oct 8, 2011

Queen

I was going to use this as a 'Make Your Day Monday' post, but I couldn't keep it to myself that long!


She didn't need a crown to be a queen, but I'm sure it felt nice! :)



Sep 28, 2011

People Who Hurt People

I am so glad I came across a post on the blog Teaching All Students (a blog I recommend!) because I was directed to these videos, and I quite simply had to share them with all of you.



Jul 22, 2011

My Kind of Heroes!

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Have you been able to take your family to Morgan's Wonderland yet? I only feel like I've been there by living vicariously through their blog.... You should follow this blog, it makes me happy to see all the sweet faces having fun like they've never been able to before!



Jette, Rocket, XRay & Morgan of Morgan's Wonderland Heroes' Club

Jul 18, 2011

Inspiring Room Makeovers

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by John Kaiser of Guideposts

I am a huge fan of the TV show Extreme Makeover: Home Edition. Partly because I’m a commercial interior designer.

The show, which provides remarkable free home renovations to families in need, tugs at my heart. Four years ago an episode did more than that. It gave me extreme inspiration. It featured a boy who used a wheelchair. His house, once a minefield of obstacles, was made safe and accessible, and his room was transformed into a fantasy land. “For me?” he squealed. My wife, Susan, and I got choked up. I wish this show had been around for Lauren and John, I thought.

Lauren and John, the children of two sets of our friends, were adults now. But as kids, Lauren battled kidney failure and John suffered a traumatic brain injury in a car accident. They spent months stuck in their rooms, recovering. Rooms that felt like hospital wards.

I pictured a team of people from right here in town making over rooms for children like them, helping them feel less like patients and more like, well, kids! And we could redo their siblings’ rooms so they wouldn’t feel left out.

I didn’t tell anyone about my idea. I mean, it was pretty far-fetched. Sure, I’m an interior designer, but it’s not like I have the resources of a hit TV show — or its budget! Still, that night I prayed, Lord, show me what I need to do.

A few months later Susan and I went to our church study group. “I have an idea that I’ve prayed about and I need your help,” I blurted out. What are you doing? I thought. You haven’t even told Susan yet. Before I knew it I’d told them the idea. I looked over at Susan and she smiled.
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I called Lauren’s and John’s parents. They were delighted to advise us. I told everyone I knew about the idea. A few said they’d volunteer, but not enough to get things off the ground. One morning I said another prayer, Lord, thank you for clearing the way, but we’re going to need more help. Almost immediately my phone rang off the hook, as if everyone decided to help all at once: interior designers, architects, and social workers and pediatricians who would help us find the children most in need. In February 2008 we became a registered nonprofit called Welcome Home Angel, Inc. Of the 12 members of our church group, four joined the board of directors and the rest volunteered their help.



Since then we’ve redone 10 rooms for local kids. Kids like Gage, an 11-year-old with muscular dystrophy who loves motorcycles. “Holy Moly!” he shouted when he saw his Harley-Davidson-themed room.

His hospital bed had Harley logo sheets. Flames streaked across the walls. His bathroom had a wide space under the sink to fit his wheelchair, and grab bars so he could lower himself into a shower seat. On his nightstand stood a framed photo — Gage in the sidecar of a Harley taken during a ride we’d set up with a motorcycle club, the Carolina Coast Hogs. And for Gage’s younger brother, Drake, we made a football-themed room.

Gage spun his wheelchair around and grinned. “It’s awesome!” he said. I choked up again.

Even more awesome than on TV.

Jul 5, 2011

Beach Walker

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I saw this Beach Walker on the blog, A Life Less Ordinary. Amy gave permission to share the idea with on kidz, so here it is!







Go here for a tutorial on how to make a Beach Walker of your own.

Thanks for sharing, Amy!

Jul 1, 2011

A Site For Special Chefs

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Your Special Chef is a collection of resources to help teach cooking skills to individuals with special needs. On the site you will find recipes, lesson plans, video tips, adaptive cooking tools, and more!

Jun 27, 2011

Positive Exposure ~ Redefining Beauty

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By WINNIE HU
Published: June 21, 2011

RIDGEWOOD, N.J. — Students at Ridgewood High School were shown photos of young people with genetic disorders — muscular dystrophy, albinism, port-wine stains — and told not to look away.

The Pearls Project show at Ridgewood High School in New Jersey features a range of student work. At the top is a photo of Rebecca, 21, whose experiences living with a rare joint disease inspired a student's poem.

Then, those studying philosophy wrote essays about the meaning of beauty. A ninth-grade biology class went beyond textbook definitions of Turner and Marfan syndromes, communicating with real people to see how they lived with their symptoms. And a dance class created a piece about people with disabilities, in which dancers broke away one by one to perform in isolation.

“It was kind of shocking, because you felt yourself judging right away,” said Madison Konner, 18, a senior in the philosophy and dance classes. “You say, ‘There’s a boy with a funny face, ha ha.’ But you find out later he can’t help it.”

The unusual lessons are part of a new effort, called the Pearls Project, to promote tolerance and empathy in a school culture where being different can mean social exile. Ridgewood teachers developed it this year in partnership with Positive Exposure, a nonprofit group in New York City founded by Rick Guidotti, a fashion photographer.




Mr. Guidotti, who has photographed supermodels like Cindy Crawford and Claudia Schiffer, began snapping pictures of children with genetic disorders in 1997. A year later, Life magazine published his photo essay on albinism, titled “Redefining Beauty.” His work with these subjects has also been displayed in galleries, medical schools and children’s hospitals, as well as at Harvard University and at the Smithsonian Institution’s National Museum of Natural History.

For the Pearls Project, Mr. Guidotti photographed 11 young people, each with a different disability. He also arranged for them to blog about their experiences and answer questions from the Ridgewood students. The subjects are identified only by their first names — Byron, Ashley, Rebecca, et al. — and come from various states.

“Genetic conditions are depicted as images of sickness and sorrow — it’s always a kid up against the wall in a doctor’s office,” Mr. Guidotti said. “The idea was to bring these gorgeous kids into a community that didn’t know them and create a more inclusive society. It’s our responsibility to steady our gaze to see beauty, and not look away because we’re told not to stare.”



This fall, the project will expand to at least five more high schools across the country, Mr. Guidotti said, underwritten by $130,000 from a fund-raiser hosted last month by Ralph Rucci, a fashion designer, and Ian Falconer, author of the popular children’s series “Olivia.”

The principal of Ridgewood High, John A. Lorenz, says the project teaches important lessons about tolerance as schools face an increase in bullying and serve more special-education students than ever. The 1,700-student high school started a separate special-education program in 2008 for students who were once sent out of district; it now serves 18 people. There is also a club that works with children with genetic and behavioral disorders to put on musical theater shows.

“This is what real learning is about,” Mr. Lorenz said. “It’s relevant, it’s meaningful and it’s fun. Not one student said, ‘I wish I didn’t have to do this.’ ”

Teachers created assignments requiring students to get to know the Pearls subjects — read their blogs, watch their videos — and to put themselves in their places. The students were encouraged to ask questions, which their teachers passed along via e-mail.

Amanda Muccio, 15, a ninth grader in a biology class, said she asked Ashley, also 15, whether she was embarrassed to meet boys because she had muscular dystrophy and used a wheelchair. Ashley replied no, that if boys saw only the wheelchair, that was their problem. “I’m so happy for her that she can be so confident in herself,” Amanda said. “I envy that.”

In philosophy class, students used the Pearls photos to start a full-scale discourse on what Kant, Hume and Nietzsche, among others, thought of beauty, then wrote papers about what they had learned. “The challenge in a class like philosophy is not so much the material but getting them to carry it into their lives,” said Patrick Bernardo, the teacher. “This was a natural fit. Almost from the beginning, they saw the relevance.”

Creative-writing students who had signed up to write about their own feelings found themselves trying to write poetry about strangers. “It kind of took me awhile to get into it,” acknowledged Tony Boniello, a senior. “Maybe subconsciously I didn’t want to give writing about someone else a chance.”

Then Tony started reading the musings of Rebecca, 21, a college student with arthrogryposis multiplex congenita, a rare condition that can cause joints to be stiff and crooked. He fashioned a poem out of the sights that she found most beautiful: a sunset, the ocean, dolphins, a rainbow, a person who takes time to interact with someone with a disability.

“I think it’s important to get out of your comfort zone,” Tony said. “There’s only so much you can learn about yourself.”

A version of this article appeared in print on June 22, 2011, on page A18 of the New York Times, New York edition with the headline: Learning Empathy by Looking Beyond Disabilities.

Jun 4, 2011

Lighting a FLAME

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FLAME, a group from upstate New York made up of 10 people with developmental/physical disabilities, including autism, Down’s syndrome, and blindness, is capturing the world’s attention but their message remains the same. The band from Lexington Center, Fulton County Chapter, NYSARC, Inc., wants to change the world through music. They are a phenomenon that inspires people and changes the way the general public view people with disabilities.



People of all ages and backgrounds connect with this special rock band, especially those who have a disability. Parents are often overcome with emotion watching FLAME, seeing that it’s possible to have their child achieve great things and, even more importantly, have a fun, fulfilling life.







Lyrics for Call This Home by FLAME

I hear the leaves crack under my feet
Black tires rollin' down this old street
So many years ago, promises we both know
Time just moved by so fast, can I rewind the past?

It feels so good to see
I'm makin' life the best that it can be

Stayin' close to home, I miss that part
As for me it's a colorful story
I think I'm doin' fine

I've traveled a road on a new day alone
it's been a long hard ride

I've been tryin' to find my way all this time
Now I'm ready to call this home
Call this home



So much the same
So much has changed
I'll never forget the holidays
Your folks invited me to stay

I know that it all goes so far
It's hard to express my gratitude
You've done so much for me
And my broken family

A hard lesson to learn sometimes
Is to go out in the world and find
A better life that we've heard of
Sometimes it scars the ones we love

When I hear about what's left back home
It might be gone, I just don't know
I'm not sure where we go today
But I'm here to say....

It feels so good to see
I'm makin' life the best that it can be

Stayin' close to home, I miss that part
As for me it's a colorful story
I think I'm doin' fine

I've traveled a road on a new day alone
it's been a long hard ride

I've been tryin' to find my way all this time
Now I'm ready to call this home
Call this home

FLAME began in 2003 from a recreation program at Lexington www.lexingtoncenter.org. The plan was to have the band play at the agency and around town. However the profound effect they have on their audiences made it impossible to keep FLAME within the confines of Fulton County. Word spread and requests for hire began pouring in and FLAME now averages over 70 paid performances per year, including concerts in 15 different states (NY, NJ, PA, CO, DC, ID, MA, ME, VT, RI, IN, CT, TX, OH) and in Europe. They perform for national and statewide conventions, corporate conferences, civic events, school functions, dances, and private parties. Their song list contains over 100 classic hit rock, country and blues songs from the past five decades.

FLAME is now an international touring band in high demand. They have released 3 CDs, travel on a custom tour bus, and working on releasing a 4th CD....

Recent events has catapulted Flame into the national spotlight. Performances at Manhattan's Gracie Mansion for NYC Mayor Bloomberg, being in "People" magazine and being featured on ABC TV's "Good Morning America" has positioned Flame to greatly expand their scope of influence.

As FLAME continues their quest to change the world, their following of adoring fans and grateful parents continues to grow. If you would like more information or would like to book FLAME contact Tim Fiori, PR Director or Maria Nestle, Manager at Lexington Center at 518-762-0024.

Source: flametheband.com/bio
CD's available for purchase here.
A few songs are available for free download here (on the right under Audio).


There is a great article by People magazine here, if you want more information.

May 23, 2011

AbleGamers

Article by JOHN BRANCH
Published: March 5, 2011
New York Times

Hans Smith has spastic quadriplegic cerebral palsy and a love of baseball. A 24-year-old student at Boise State, he uses a wheelchair and cannot dress or feed himself but appreciates the nuances of sacrifice bunts and cutoff men.

Hans Smith, who has a form of cerebral palsy, consulted with Sony designers to adapt the PlayStation 3 game MLB The Show for players with disabilities.


Playing baseball on a field with friends is not an option, so Smith enjoys the game on his PlayStation 3. Even that can be frustrating because he does not always have the dexterity to direct his video game players to do what he wants.

That should change with the release Tuesday of this year’s version of MLB The Show, the most popular baseball video game. To complement the beginner, experienced and expert modes, Smith worked with a Sony design team to devise an A.D.V.A. mode. It stands for Association for Disabled Virtual Athletes, an organization that Smith is starting with the hope of making games more accessible to those who can play sports only on a video screen.

“Now, whether you win or lose,” Smith said, “it will be based upon your ability to know the game — to know when you want to do a double steal, to know when you want to do a squeeze play, to know when you want to bring your infielders in — instead of, ‘Oh, no, I can’t hit that button.’ ”

For people like Smith, another hurdle has been removed by the design team at Sony.

“A.D.V.A. takes the controls of the beginner, and the skill and the strategy of the expert, and mixes them together,” said Kolbe Launchbaugh, senior designer of MLB 11 The Show. “What we’re trying to do is give you an easier way to physically play the game, but it’s mentally challenging.”

The AbleGamers Foundation
estimates that about 33 million Americans with disabilities are video game players. Smith’s concern involves only sports-theme games.




“There is a demographic here that hasn’t been reached,” he said.

He did not intend to become another advocate. Smith was so thrilled by MLB The Show a couple of years ago that he sent a thank-you letter to the design team for giving him the chance to play baseball.

“For me, that was as real as it was ever going to get,” Smith said.

The design team at Sony Computer Entertainment America was moved.

“This all started not because of the letter, but because of what people did about that letter,” Smith said. “If they had chosen to ignore this letter, none of this would have ever happened.”

The design team invited Smith to its studio in San Diego, where he spent two days in late 2009. Smith sat in on meetings, and he was asked for suggestions to make the game better. He became sort of a consultant to the 70-member design team.

“We really liked the guy,” Launchbaugh said. “Really cool kid. Really smart. He fit right in with our team. We had a great time, and it kind of became a friendship.”

Eventually, it led to the A.D.V.A. mode. Launchbaugh said MLB The Show has about 70 settings that can be tailored to individuals. The A.D.V.A. default settings, set to Smith’s recommendations, can be altered.

“Last year, you could have gone through all of the settings to what A.D.V.A. means today, but it would have taken you about 20 minutes,” Launchbaugh said. “And you would have had to know exactly what you were changing and what it meant. This is just a really nice way to have members of his organization say, ‘O.K., I can just start with this setting, and it’s going to be compatible with me.’ ”

For Smith, a big issue was when he played the game online against other gamers. Until now, online competitors had to be on the same settings, “so the first inning they’d always be up, 6-nothing,” Smith said.

The new edition allows gamers with different settings to compete. The other player simply must accept the challenge.

Smith controls his wheelchair with a joystick, but the PlayStation controller has 12 buttons and 2 joysticks, demanding an array of quick-fingered combinations. During an at-bat, for example, base runners are usually controlled by several buttons while the player anticipates the pitch.

“This is difficult because you need, like, four fingers to achieve this,” Launchbaugh said. “So what we’ve done is, while you’re batting, base running is automatic. Once the ball is in play, you can control your runners.”

Fielding a ball usually means moving the defender into position with one joystick, then using buttons to throw. In A.D.V.A. mode, fielding the ball is automatic, but deciding where and when to throw is up to the player.

Swinging a bat requires a single button push.

“It’s not dumbing it down,” Smith said. “It’s trying to take the physical factor and remove it, so that the game becomes more of a mental competition.”

Smith plans to go live with a Web site, advasports.org, on Tuesday to coincide with the release of MLB 11 The Show. He does not know where all this will lead. But in a video game world where reality is increasingly treasured, and where more game systems use motion sensors to enable players to control the action, Smith wants to help ensure that millions are not left in technology’s wake.

“That kind of freaked me out — what if it got to a point where everything is motion?” Smith said. “I understand that it’s a marketing thing, and I understand that they’re trying to get people up to move. They’re trying to make video games look like a very good exercise option.

“But for people like us, it’s, ‘Oh, no, what are we going to do?’ There are these people out here who can’t do the motion; they can’t be the controller. So depending on how well the A.D.V.A. does, I hope in the long run, there will be more systems and more games that do this.”

May 16, 2011

Abilities Expo

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I love this news clip about different adaptations highlighted at an Abilities Expo!

May 13, 2011

We Can Play

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Children of all abilities need to play! This PDF includes activity ideas for children with disabilities. This includes a how to guide for activities such as how to design an accessible birthday party, coping in the car, and cooking with your child. View PDF here.

May 4, 2011

wHOLEhearted

We'd like to introduce you to wHolehearted Kids, a site whose mission statement is:

Let curiosity inspire amazement.
Consider the whole person.
Acknowledge gems already present.
Value wisdom learned from having a different experience.
Focus on what people CAN do.
Inspire self-reflection on how differences contribute.
Model living wHOLEheartedly.
Share David’s wisdom.

The creator of the site, Cyndi Elliot is an occupational therapist from Montana who is launching a new line of dolls with special needs. Here is her bio:

I am the sister of a dynamic, authentic brother. David was born four years after me, the tenth child. The impact of his life on mine is beyond measure. David expresses himself with extreme truth. I follow his lead.

At a very young age, I recognized David’s body and cognition were slower, but he had a greater ease about himself in his heart and in his mind. His wise abilities stood out above the rest. David had a hole in his heart, and surgery when he was a newborn left him with a large scar across his chest, side and back. I remember being little, looking at the scar and wondering, “Why God? Why did he have a hole in his heart, and why did he have to go through that?” In my early 40s, I remember having this epiphany. I thought, “Oh my God, he was born open-hearted!” And he is! Believe me, he is very open-hearted.



During the summer of 2009, I brainstormed and heart-stormed how I might honor him and children with different abilities. I have been a pediatric occupational therapist, which enabled me to meet many wonderful, multi-abled children. Children who were strong, brave, spirited, and inspiring. The artist in me created sculptures, capturing their essence. Now I am sharing, through my dolls and my message, the wHOLEhearts and wholeness of those who have taught me.



This journey has been led by my brother’s love.


Each doll features a short story of the accomplishments of the child they honor. At first glance, it is next to impossible to tell the doll represents a special needs child and is only revealed once you read the story and “know” the doll and their story. It is this moral lesson that Elliot intends to teach not only children but everyone to live wHOLEheartedly and see everyone as wHOLE.

“They are already wHOLE. They just need our help with some little bit - instead of looking at them as broken, and we need to fix them a lot to be like us. I think they already have a lot that they can teach us, Elliot said.





View all of the dolls here.

May 2, 2011

Free Wheelchair Mission

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This story about the free wheelchair mission most certainly made my day. I hope it makes yours too!



Engineer Don Schoendorfer took a trip to Morocco and saw a beggar who had lost the use of her legs drag herself across the road while everyone around ignored her. The image stuck with him.

Several years later he moved his family from Boston to Orange County “which is where you go when you want to make a lot of money,” he said.

He believed in God, but religion was not a part of his daily life. After struggling with his oldest daughter’s bulimia for 3 years, the family returned to their religious faith.

In 1997, Schoendorfer sat through a sermon at his church that forever changed him. The sermon was based on a biblical parable about a rich man who spends his life building bigger grain silos but dies before he can enjoy the wealth he has stored.

He began tinkering away in his garage with plastic lawn chairs and bicycle wheels. His wife, although supportive, soon tired of his creations cluttering the home. His peers thought he had gone off the deep end.



A year later, Don now runs the Free Wheelchair Mission, a faith-based nonprofit that has given away nearly 500,000 wheelchairs in 77 developing nations. The organization has grown from a volunteer effort to a nonprofit with a staff of 18 and a $6.5-million budget.



Schoendorfer says he has relaxed and learned to trust in God.

“I used to live by goals, I used to live by plans, and very elaborate goals and backup plans,” he said. “Now I feel like I’m more reacting and keeping an open mind and keeping a strong faith.”






To learn more about the Free Wheelchair Mission, visit their website at http://www.freewheelchairmission.org.

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