Dec 26, 2011

Different



I’m not your average type of girl
Not part of this stereotypical world
Don’t wanna be anything but myself
I was never good at tryin’ to be someone else

Take me as I am I’m not changing for anyone
Guess it’s me against the world but tell me one thing

Why do they hate me for being different? Different.
And when will they see that being different is good? Different

High school life is so black and white
You either fit in or stick out, but that’s just life
For me I’m sure that some day they will find
That fitting in was overrated

Why do they hate me for being different? Different.
And when will they see that being different is good? Different.

Dec 24, 2011

Light

Caleb's eye really responds to light so we have a light box we use to help him with vision.


It touched my heart to see Mitchell pull it out so he could teach Caleb.


It melts me to see Mitchell so eager to share the light with Caleb


While at the same time Caleb teaches him what true light really is.


I hope my boys will never forget the light and love they feel when they spend time with Caleb.


For the way he shares his light is divine indeed.

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Dec 22, 2011

One of the Best Gifts: Time

This is a TV interview with April's mom, Janene Baadsgaard, where she shares 4 daily rituals that help her make time for the ones she loves.






Create Memorable Mealtimes
Families who commit to eating at least one meal together soon discover the benefits that come from creating a golden family hour each day. This hour is time set aside exclusively for the family. It helps to set aside a specific time every day and eliminate as many distractions as possible by turning off the television, computer and telephones. Community, school, career and church activities are numerous and will encroach on family time if not carefully selected.

A golden hour might include:
Preparing a meal together
Saying a prayer
Eating together
Reading a chapter from a good book/talking about the day's activities/singing a song
Doing the dishes together
Helping with homework/going for a walk/throwing a baseball/playing a board game.

Make Homecomings and Departures a "Touching" Event
Everyone likes to be noticed, appreciated and loved. It only takes a few seconds for parents to make every homecoming and departure a little more warm and fuzzy for their children. Don't hold back. Be warm and affectionate when your child leaves or come back home.

Parents can:
Kiss
Hug

Make a positive comment - "I believe in you!" "Make it a good day." "I'm so glad you're home!" "I missed you today."
Wave from the window
Blow kisses
Smile
Say "I love you."

Utilize Transport Time
Most parents and children spend part of their day in their car going and coming from a multitude of activities like school, lessons and activities. Parents can put this time to better use by recognizing car time as a great time for positive personal parent/child interaction.

Parents can:Turn off cell phones/radio/stereo
Be truly present
Talk
Listen - Sometimes children open up best when they aren't looking straight at you
Create fun car games and a family goodbye honk
Invite one child at a time to accompany you on routine errands

Establish Pleasurable Bed Time Routines
Bedtime routines can be painful and stressful if rushed or forced. It only takes a few extra minutes to have positive personal time with each child each night.

Parents can:
Stager bedtimes for each child so they have individual time and avoid interruptions
Read books
Tell original adventure tales starring the child
Take a few minutes to carefully tuck the child in bed
Ask: "What was one good thing that happened today?"
"What was one thing that was not so good?"
Sing a lullaby
Pray
Stroke the child's forehead
Say I love you
Rub noses/kiss/hug

Children who have been loved know how to love. Daily loving rituals don't take more time or money; they only require that parents re-order their lives so that they have unhurried time for the people who matter most.

Dec 14, 2011

Who We Are

A sweet perspective from Caleb's grandmother, Janene Baadsgaard, of Baadsgaard Bylines.


I've noticed that when we are meeting someone for the first time we often ask, "What do you do?" It is a common question for most of us are curious about other's occupations.

I've also observed that as my children were growing up many people asked them, "What do you want to do when you grow up?" referring to what career they will choose. Prestige and the ability to earn money are often the result of what we choose to do.

So we grow into adults who focus almost entirely on what we do to feel good about ourselves. If we don't do enough during the day, we feel lazy. If we don't choose the right career or if we do something wrong, we fill our hearts with regret or guilt. More and more we learn to focus the camera lens of our lives on what we do.

The other day I was speaking with someone about my grandson Caleb. When people find out Caleb was born without a brain they often stand in stunned silence. Then they always ask, "What can he do?"

I know the question is innocent and I am not offended but I can't help thinking that they are missing the point. Caleb might not have a brain but he has a heart and soul. If I go through the usual list of important achievements in life, Caleb may not fit the bill. But I always long to explain that it is not what Caleb can do that defines him.

And sometimes the person I'm talking to persists with detailed questions like . . .
"Can he see?"
"Can he move?"
"Can he hear?"
"Can he speak?"
"Can he eat?"
"Can he breathe?"
"Can he think?"

And though the questions are innocent they often leave this impression . . .
"Well if he can't he do anything, I feel so sorry for him and for you. If he can't do anything - what purpose can his life possibly have?"

Because our family has been blessed to have Caleb in our lives we have learned that what makes someone valuable is not what they do but who they are. Though Caleb's body makes is almost impossible for him to do much of anything in a physical sense, his presence is enough for us. His divine and noble spirit is alive and well inside a body with severe physical limitations yet enhanced spiritual abilities. Caleb speaks without language getting in the way. He loves without the inherit limitations of physical affection. His soul shines with a light only seen through the eyes of love.

So the next time you see someone like my grandson Caleb do not ask their family members what they can do. Do not feel sorry for them. Instead say, "Tell me about your child."

And the next time you are thinking dark thoughts about self or others because of something you or they did of failed to do . . . stop.

Then, pray.

Allow yourself to feel the love of God for you and every person who has walked this earth. You are not valuable to God or those around you because of what you do or don't do. You are valuable because you are you.

Your existence - your presence - is enough.


And perhaps when you talk to the youth you might ask, "Who do you want to be when you grow up?" For it is our inner qualities, the qualities Caleb already possesses, like compassion, patience, gentleness, meekness, and love that are the true measures of a meaningful life.

Dec 5, 2011

Tribute to Siblings

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This is the family whose story inspired me to start Chloe's Sunshine Playground. They deserve the recognition they got on the Today Show last week. Each of them touch my heart so much, and I think the song to a special needs' child's siblings will resonate to many of you....

Visit msnbc.com for breaking news, world news, and news about the economy


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Dec 3, 2011

The Gifts We Keep

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I have just fallen in love with this song and had to share it.



This is my favorite part:

These are the gifts we keep
and this is the morning that we breathe
and then we see
These moments are the only gifts we need



Even though the song is specifically about Christmas morning, it makes me think of all the little magical Christmas moments that we share with our children! Those moments truly are the gifts we keep. I hope you cherish all the moments with your little ones this year!

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Dec 2, 2011

It Snowed!

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Here are a few ideas to do with your family when it snows, and a catchy song too!
(Images linked).



Indoor Ideas:




Outdoor Ideas:


Dec 1, 2011

Now I Can Photographic Documentary Book





This time of year it seems like everyone around the world opens their hearts and their wallets to help those around them. It's actually quite a beautiful thing. Part of me doesn't care that it's only during this time of year that people seem more charitable. It seems appropriate, really, that if there is only 1 time of year when we all open our hearts to more giving of our time, talents, and physical means...it would be now. It makes me happy. If you happen to be looking for a good cause in which to help or donate to, I have an opportunity for you here.


Many of you know that Samantha attended therapy at Now I Can this past Fall. It was fantastic and we will return in March 2012. While we were there, I met a photographer, Michael Ririe, who became attached to these children. He has devoted his time and talents to spreading the word, through is talent, about Now I Can ~ and our children. Most recently, he has put a book together filled with pictures and written contributions from families. It is beautiful. He's waiting to gather the funds for publication. Maybe it's 'cause my baby girl in it a few times and I actually wrote in the book...I mean, that is kind of cool...but I want this book published. I really do believe this book will make a difference. His previous work to draw attention to Now I Can was a success, but he's turned it up a notch with this book. In creating a book of professional photographs that showcase these children...their beauty, spirit, and drive...as well as what is written about them, we are hoping to bring more awareness and raise funds for the center -- allowing more financial assistance to families like us. We were recipients of a grant that helped cover some of the expense. That extra money made a big difference to us and insured Samantha's return to Now I Can. What if every family in need could send their child to Now I Can with some kind of financial assistance? What is the potential of this small book? It will raise awareness. It will tell the real story to future possible donors. And ALL proceeds generated will go back to Now I Can therapy grant fund. 100%. That money will go towards Sammy. It could go to your child. $1? $5? $12.75? $25. More? We have 348 "registered" followers on Kidz. What if we all donated $5? That's $1,740. Pretty cool. Anyway. Check out the link to Kickstarter -- Now I Can -- A Photographic Documentary Book and watch the video. And decide. If enough people don't support it and the book doesn't happen, your donation won't be charged. You won't "lose" a thing. We have until December 31. But if there are enough of us, and this book does happen, you could be one of the many helping families just like ours.


The video, alone, is worth a look.


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Love is Christmas

Sing to Me Saturday on a Thursday? I'm such a rebel!

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I don't care if the house is packed,
Or if the strings of light are broken.
I don't care if the presents are wrapped,
Or if there's nothing here to open.

Love is not a toy, and no paper will conceal it.
Love is simply joy that I'm home.

I don't care if the carpet is stained; we have food upon the table.
I don't care if it's gonna rain, our room is warm and stable.
Love is who we are, and no season can contain it.
Love would never fall for that.

Let love lead us, love is Christmas.



Why so scared that you'll mess it up? Imperfection keeps you haunted.
All you need is your best, my love. That's all anyone ever wanted.
Love is how we do, let no judgment overrule it.
Love, I look to you, and I sing.

Let love lead us, love is Christmas.
Let love lead us, love is Christmas.

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