I was so impressed to hear that Ellie's mom, Melissa, started an organization to help others. I had to share a little about the organization as well as a touching video.....
4P Aussie Kidz is the only Australian organization that exists to provide financial assistance and support to families with children who have Wolf Hirschhorn Syndrome (WHS)
Wolf Hirschhorn Syndrome refers to a condition that is the result of a genetic error on chromosome 4. It is caused by a deletion of genetic material near the end of the short (p) arm of chromosome 4. This chromosomal change is sometimes written as 4p-.
If you are in the area and can support their October 22 event, go here to purchase tickets.
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