Oct 6, 2010

Born of My Heart

kidz


by Brandi from the blog Born of My Heart.

Brandon and I (Brandi) tried to conceive for five years. Years of doctor appointments, infertility drugs, and negative preganancy tests were just too much to handle. We started praying about adoption. We began to look into agencies, and we became foster parents. The next two years flew by. We had two failed adoptions that were both heartbreaking, so we decided to put adoption on hold for a while.

That's when I read my email. A wonderful woman, whom we had worked with in adoption before, asked us to view the profile of a special needs little boy. We did. We saw his picture and fell in love in what we knew was our son. ~~~There is defiantly more to this story but that is another story in and of itself~~~

Joshua Matthew Lee became our son on September 17, 2009. He had a tragic little life and needed lots of love. Matthew (as we call him) was born on time, perfectly healthy! He went home to his first adoptive parents at two days old (my birthday) and was their miracle boy. At three months of age Matthew was not meeting his milestones. He was not making eye contact, had very little head control, and did not smile. An MRI then showed what would become the beginning of his diagnoses. Matthew has Agenesis of the Corpus Callosum, Agenesis of the Septum Pellucidum, Septo Optic Displaysia, Cortical Visual Impairment, Optic Nerve Hypoplasia, Epilepsy, Cerbral Palsy, Low Tone, Photophobia, Bilalteral Schizencephaly, and global developmental delays.



Matthew's first adoptive family did not feel they could parent a special needs child. After seven weeks in private foster care, we brought Matthew home. Our sweet boy is a miracle. We were told he would not smile socially~he laughs. We were told he would never make eye contact~~he tries. We were informed he would never be mobile~~we have video of him attempting to crawl. Matthew is now seventeen months old. He still has little head control. He has 100+ seizures daily even with two anti seizure meds and the Ketogenic diet. Developmentally he is still an infant. But labels have never been our "thing." We choose to see him for the beautiful, sweet, kind hearted boy who enjoys laughing while his sister cries. He will hold your hand and in doing so grab hold of your heart.

Little did we know, but eleven days after we brought Matthew home, his sister was born. Lillian Autumn Grace was born anywhere between 28-32 weeks gestation and addicted to cocaine. Her birthmom relinquished rights and Autumn (as we call her) was available for adoption. We knew about her, but were not in a position to adopt so soon. We prayed for her. She was a rockstar. She stayed just over six months in the NICU before finally being discharged in March. Autumn was born addicted to drugs and had failure to thrive. She was a measly 3 lbs 4 oz at birth. She had suffered a stroke to her spine in utero that has left her paraplegic. Her legs are "deformed" and her feet are clubbed. She has undergone three surgeries to correct the strictures that were in her intestines, and has sailed through them all.



In March our prayers were answered, and we knew Autumn was our daughter. We became a family of four in April 2010. Autumn is cognitively intact and is blossoming. She is still quite small for her age, but is crawling everywhere. She will not be able to correct the deformity in her legs or her clubbed feet and will never walk. She will not let that hold her back. Next week she turns a year old. We are constantly reminded at just how beautiful and fragile life is when looking at our blessed babies.



We never intended to adopt special needs children. All we knew was we were meant to be a mommy and a daddy. We now know that our children have taught us more than we ever knew possible.

6 comments:

Searching for Grace said...

Thank you for sharing our story. We feel so blessed to be a part of Kidz!

Kristina said...

I love this story. It shows the love truly can overcome so many obstacles. And, as for doctors who use hte word never ---- well, I say let's see what the child has to say about that!

Jenny said...

Brandi, you are so inspiring. To choose the special needs life is different than to be handed it and think, "Ok, I can do this." We, too, have adopted and are currently going through the process again. I firmly believe that the right children go to the right homes...that your little babies were sent to you, and you to them to create your family. Adoption is truly a blessing on many levels ~ and I have found special needs to be a like blessing. Anyway...I could go on and on. Thanks for posting this.

Alicia said...

thanks for posting Brandi, I find it inspiring that you have taken on both children. We adopted a son also who has bilateral schizencephaly.

Janet "Grammy" Harrold said...

Brandi,

What an amazing story! Your children are blessed to have you, and you them. I wish the world was filled with more people like you and your husband. Fasten your seatbelts, your in for a bumpy ride, but I know you can handle it.

LISA said...

I was wondering if you view this if you would mind emailing me. We have a friend whos baby is suffering tons of seizures and doctors cannot seem to find a reason or really know what to do. It sounds similar to your son and I was wondering if he had seizures from birth? I know you did not have him at that time but thought you might know. I love reading your story, I also am an adoptive mom, ours through foster care and know what a blessing our kids can be! clapp_lisa@yahoo.com

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