Perspective

Perspective really is quite amazing!



We've been doing HBOT with Emma and she has finished 8 "dives" already of the 40 total planned. For each dive, it requires us to drive 1 hour 45 min. in the car to the place, 1 hour in the chamber, feeding, diapering, etc. before we get back into the car and drive another 1 hr. 45 min. home. This has caused our already long days to seem longer.

Today and tomorrow we do not have a dive. Emma is participating in her normal therapy schedule this week before we take a two week break from her regular schedule to complete 20 HBOT dives. That means we went to the hospital for PT and AV therapy this morning and she'll have OT tonight resulting in sort-of free time from 11am - 4pm! It's amazing to me how much time it seems I've just gained to my day without traveling to/from HBOT treatments and it's really just what we would normally do on a typical Wednesday.

Before I thought Wed. was one of the hardest mornings of the week - getting the girls up, Julia to school and Emma to AV by 9am takes quite a bit of effort! But today I flew threw the day and feel like I now have some time to spare. Not much has changed except for my perspective on time. And that led me to think about how my perspective has changed on other things.

Like children. Before we had children we had an idea of what it would be like to be parents and how we would handle a variety of situations that I saw other parents in with some less than cooperative children. Ummmmm......hello???? Really? Our expert parenting ideas changed drastically once we actually had a child of our own. I think this is typical for most parents, so I'm not going to add much to this.

Like deafness. When we first found out Emma was deaf we were heartbroken. But, as time went on and everything unfolded I now think that deafness isn't so bad at all on the spectrum of things that can challenge your child and that if Emma was only deaf how easy things would be. When I talk with other parents with children who are deaf without other issues I know how hard they think they have it, but I just think that it sounds so easy. Of course I also talk with parents whose children are much more involved than Emma and I'm sure they think we have it easy. Again, perspective.

Like cerebral palsy. This is a hard one for me to articulate how my perspective has changed. The most striking change has been in my attitude. I do not take any movement, sound or milestone for granted. I celebrate each and every one and pray each and every day for total healing for Emma so that life can be easier.

Like support. Everything seems so much easier when you have support from others. They say it takes a village to raise a child, so just imagine what it takes to raise a child with special needs. Unless you are raising one I really don't think that you can fully understand what it is like, how little free time there really is available in a day.

Like doctors. I used to think they were experts on what is going on, but now know that they know some things really well but that most often what is going on doesn't fall into a nice neat little category. So, they are make educated guesses on what is possible, what will work, and how to do things. The good ones are up front about it and really listen to you. I found out it's best to do your own homework, do your own research, and go in asking pertinent questions instead of looking for someone to guide you through the process. When I was in grad school the first thing they taught us was when the professor was talking, they were presenting their version of events and you should really question what they are leaving out instead of what they are including. After all, class has a start and end time and can only cover so much and what is covered is what the professor thinks is important but you are missing out on the big picture if you don't do your own research and come prepared to ask questions. This is a valuable lesson and one that carries over into the medical community!

I could say a lot more on this matter, but for now I'm done and I'm going to go make good use of the time I have before Emma wakes up and we go pick Julia up for school.