The Life That's Chosen Me

Wow. Thank you to Heidi and Junior for sending me an email to share this video. Every once in awhile, I come across something that feels like it was created just for me in that exact moment, something just like this....



Written by Karen Taylor-Good and Lisa Aschmann

We had such expectations, we would soon be giving birth
To the next Chopin, the next Einstein, the greatest child on earth
And we’d be the perfect family, soon we’d have the perfect kid
We’d never have a challenge or a problem, God forbid
Oh but Life had different plans, so I need for you to understand

Don’t desert me, don’t ignore
I need friends now more than I ever did before
Show compassion but please don’t pity me
I’m a parent just like you, it’s true
But I have special needs

I need you to notice that my life’s different from yours
I need you not to judge me, don’t condemn and don’t keep score
I’d love an extra pair of hands, or just a hug or two
I need you to acknowledge that I carry more than you
Got the world here on my back, so I just thought I would ask

Don’t desert me, don’t ignore
I need friends now more than I ever did before
What you take for granted comes so hard for me
I’m a parent just like you, it’s true
But I have special needs

I need answers, I need help, it’s so much work
And a miracle or two sure wouldn’t hurt

Don’t desert me, don’t ignore
I need friends now more than I ever did before
It’s not the life that I’d have chosen, but it’s the life that’s chosen me
I’m a parent just like you, it’s true
But I have special needs

I need you to listen, I need you to care
I need your understanding, I need you just to be there
I need your friendship, maybe a hug or two
Oh God I need a miracle………

Introducing 'Danielle's Foundation'

My pal Keri recently informed me about this amazing site, Danielle's Foundation. It is an awesome 'non-profit resource for families of children with cerebral palsy and brain injuries.' Given my Chloe's issues, this site is particularly helpful! I have spent the majority of my day so far on the site getting questions answered and in awe of this amazing mom who is so willing to help others. Check out the site and read Danielle's story below....


Danielle Lynnette Vick was born on April 10, 2004 in Atlantic City, New Jersey. Because she was born three months earlier than expected, Danielle needed to be hospitalized for the first 8 months of her life. Her doctors were hopeful and said although she had a long road ahead, there was a great chance that she would be a perfectly healthy child.

Like most preemies, Danielle had some respiratory issues, and some problems with her lungs, so she needed a tracheostomy and ventilator to help her breathe. But she showed everyone she was a true fighter and continued to make great progress. She was a happy, spunky, bright-eyed bundle of joy.

Though her development was delayed, at ten months she was at home, full of personality and continued making progress. She was crawling, rolling over, playing, and just full of life! And then, one day, everything changed.

In 2005, three days after her 1st birthday, Danielle had an episode that forever altered her life. Danielle’s brain went a long time without oxygen. Her parents received the heartbreaking news; Danielle had suffered an anoxic brain injury. The brain damage caused her to lose her motor skills and her ability to speak. She also needed a feeding tube, and was completely dependant upon others for care.

Danielle’s mother, Florence, was quickly thrust into a new world where she had to become an advocate for her daughter to help her get the therapies and services she now needed. It became a constant struggle to get Danielle the care she needed, in fact it seemed like every time Florence turned around the therapies, benefits, and resources Danielle needed were just out of grasp, or were denied by the insurance company. Although her life had been drastically altered, and she no longer was the same active little girl, her vibrant personality and the fight in her remained strong.

Sadly, on December 28, 2008, at 4 years old, Danielle passed away due to complications of her anoxic brain damage. Though her time here ended prematurely, her memory will forever remain. Danielle moved, touched and inspired the lives of many in her short four years of life.

One major result of her inspiration was that Florence teamed with her friend and together they began dedicating their time to help other families—families that shared the same struggles, complications, and frustrations as Florence—get the services, benefits, and care their children so desperately needed.

If you are the parent of a child with a brain injury, we know the questions you have, the frustrations you face, and how your biggest goal is to make sure your child lives the best life possible. It’s a little more complicated to get our children what they need, and it takes a little more time, effort, and research, but with the right support and direction, it can be done!

We created Danielle’s Foundation as a place where parents can come to for guidance, resources and most importantly support. We’re hoping you’ll join us in our crusade to provide peace of mind and hope for the future for parents of children with brain injuries everywhere!